Docetaxel

So, here we are at the start of Week 3 of my 3 week cycle. Side effects? Yes:

  1. Look at the picture. Can you see when the fatigue started to lift? Oh, the fatigue.
  2. Leg pain. Like my bones were being expanded from the inside. Deeply unpleasant deep deep pain. That settled with the fatigue.
  3. Altered taste. Bitter ramped up to number 11. Tea and coffee tasting like soap. That’s settling now.
  4. And now my hair is falling out. I feel like a moulting cat.
  5. Not really a side effect, but I haven’t been able to go in the water because of the Hickman line. It’s still healing. I’m hoping that, if I’m very sensible and keep it to the end of the cycle, I’ll be able to immerse myself in the sea with a waterproof dressing once everything has healed.

You knew I started Docetaxel, right? We all decided that, while Capecitapine had worked, it was a bit of a risk re-starting it , even at a lower dose. We’re keeping it in reserve. That left me with a choice of intravenous medication. My veins are stuffed – too much surgery, too many interventions. When I was in hospital after the Capecitapine overload it was a real struggle to find veins. So I had a Hickman put in. Once all my stitches are out and dressings are off it will disappear under my collarbone – you won’t notice in under a shirt, but you will see a little white tube under lower necklines. Ho hum.

On the plus side – no nausea, no diarrhoea (except when I ate veggie burritos and had a pina colada – what was I thinking? I think I still have a slightly irritable bowel from the Cap.).

So, all in all, not too bad. I’ll take it. And now I know what to expect I think it will be easier.

About sarahsouthwest

I'm now in my early 50s. I started writing again as a way of exploring the world, and feel that over the last 2 years I have really grown as a writer. By day I work with children and young people with mental health difficulties. I juggle my own two children, my work, my writing practice, generally managing to keep all the balls up in the air.
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12 Responses to Docetaxel

  1. Sherry Marr says:

    You are a warrior, Sarah (and I know warriors get tired.) Thankfully this treatment seems to be helping you, and I’m glad they didnt try the one you had such a bad reaction to. Glad there are other options. Sending you the peace of old growth forests across the miles to bathe your heart in ocean breezes.

  2. I’m glad you’ve found something that’s working, Sarah

    Yours,
    David

  3. pvcann says:

    Thank you for sharing with us Sarah, I have no idea what this is really like, but you give an insight. I felt invited in to this deeply personal and painful part of your journey, blessings for the next steps, and may you well immerse.

  4. memadtwo says:

    I have a friend debating about the Hickman. Thanks for sharing your insight–I’ll pass it on. (K)

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